Further update,

1) The liver enzymes are rising but holding steady - fingers crossed I can complete the treatment. I went to the TB clinic yesterday and they were happy to give me a further months treatment.
2) Still nothing from the neurosurgeon - I'm convinced the referral has got lost.
3) I've already had a letter with date to see the colorectal surgeon - bit quicker than number 2!!!
4) wrist joints following steroid injections is really good, not pain free but very manageable.

Sadly though the rest of my joints plus my neck are really painful and stiff, just sitting here and typing is difficult. No idea what anyone else can do for that.
I had an IM steroid injection about three weeks ago without much effect, then two weeks ago I had both wrists injected. Having stopped all my immunosuppressives
because of the TB treatment I guessed this might happen but I didn't expect it to be quite so quick and quite so severe. As you might remember I am going away at the weekend
and that's a shame because it will affect it somewhat, at least in the mornings.

Gogs

Depending on exactly what is going on with your neck, you wrists might be related to the neck. The nerve branches for the right and left arms / hands exit from between the discs in your neck. If they are prolapsed you will get arm / wrist / finger pain. So that appointment with the neuro-surgeon really is a big look forward to.

I hope it comes soon for you.

As Angie says, you are making progress in small steps and that is great even if is does feel like two forwards, one back.

Keep hanging on in there.........

hi Gogs,

just wanted to say i have been keeping up with how things are from my tablet, sorry i don't like posting from there.

hope you can enjoy your holiday,

i feel your anger and frustration .. in my frame of mind i think someone would cop it from me if that happened to me,

i'm running on empty at the moment,

Bon Voyage

Suzanne x

hang on in there gogs , this thing is so blinking frustrating , ( that's the only polite word I could think of ) we're all feeling rubbish at the moment I think , I'm shuffling about like an old woman and fed up too but nothing compared to your woes, have a lovely weekend , going somewhere nice ? x

Further bit of news - social services have finally contacted me after nearly two months.
We've made an appointment to meet on Wednesday afternoon - hope my flight from Amsterdam is not delayed as I'm returning to
England that morning

Hopefully they might put together a respite care package for my husband and give me a little short break through the week.

Gogs

Fingers and toes crossed for you

Thanks everyone. Hope you all have a really enjoyable Easter.

Paul I know it's Easter and there's a lot of talk about crosses - but TOES!!!!!!!!ouch

Gogs

Oh Julie - 4.30am!!!!!!! poor you, hope you enjoy Oxford.

I'm stiff and painful and a little bit fed up with myself, and I'm trying very hard not to show it.

Gogs

Hi everyone,

Well the lady from S.S. came this afternoon - and she was lovely. She suggested that perhaps my husband should have some day care to give me some
rest for a few hours. She is going to check out a few places and get back to me. I'm unsure of what this might cost as one of the booklets she left discussed
costs and how they assess them. She hadn't mentioned any of this to me so I'm hoping it's not too expensive or that will kibosh those plans.

Loved Amsterdan - great hotel and the sights were fantastic. We went to the Rijks Museum, Van Gogh museum, the Horticultural gardens, some other large park the name
I don't remember. We walked miles and miles throughout the canal streets of the city. We had a wonderful time, except for my poor painful neck the rest of me really behaved itself.
We found some great eating places, talked with many lovely people, laughed until we cried, were completely shattered everyday. Had lunch most days from a plastic bag, sitting by
one of the canals. The sun shone most of the time except when we were in the horticultural gardens (you would know that!!) when it poured down!!!

The only disappointment for me personally was that I had forgotten to recharge the battery in my new camera (remember I went on a camera course on the Saturday) after having
used it all day o the Saturday. The result of my stupidity was that after only one day my camera was flat and I was unable to take any more photo's. A miserable lesson I
wont forget in a hurry.

I did also manage to leave my mobile phone charger behind me, so, I have no phone until my replacement charger arrives next week sometime.

I had a letter the day before going away to say my bloods are a problem again and I had to make an appointment for repeats (I already have them done twice weekly!), and also to
arrange to see my doctor. Fortunately I have an appointment to see him on Friday so he can take the bloods and tell me whats going on again.

Hope you are all doing OK (have commented on your toes Ailsa), please update me as to how you all are, and thanks for your continued interest.

Love to all

Gogs